ABOUT
PSORIATIC DISEASE UK
A patient-led alternative
OUR MISSION.
To advance education and raise awareness for the public benefit throughout England and Wales of the impact of psoriatic disease by:
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Promoting the value of lived experience, co-production and advocate for including the patient's voice in every aspect of healthcare provision.
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Providing support, guidance and resources to patients and caregivers and promote the vital role both play in managing psoriatic disease.
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Relieving people impacted by the physical and mental burden of living with psoriatic disease and associated comorbidities by providing peer support and community networks for the public benefit.
THE NEED.
As people living with psoriatic disease in the UK, we were frustrated by silos - trying to find the proper support and information as some focused exclusively on psoriasis and skin disease, while others on arthritis, and even fewer on the things that really mattered to us as psoriatic disease patients - the mental burden and impact on those loved ones around us.
We found a lack of creativity and 'meeting people where they are' regarding digital technology and online communities. We wanted to see more than simply sharing stories on social media 'for the likes'. We wanted bold action and a change from the accepted norm where difficult subjects, such as men's mental health, were limited to only being 'on trend' for one week or month of the year. We wanted to see what matters to us talked about, no matter how uncomfortable, alongside our successes.
As patient advocates in the UK, we didn't feel part of the global conversation - so we work tirelessly to represent our members on the international stage so that we can not only raise a flag about our priorities and pain points as people impacted by psoriatic disease but also learn best practices and build partnerships to strengthen our work at home for the people of England and Wales.
We believe that patient organisations should be patient-led and prioritise those they exist and work for rather than those who fund them. That's why our organisation doesn't fund clinical research but instead invests in directly supporting those living with psoriatic disease here and now.
We are Psoriatic Disease UK - Patient-led. Person-Centred. For every person impacted by psoriatic disease.
OUR
PARTNERS.
